Travelling with Chronic Illness Spoonie Travel Tips

Where I’ve Been… // Chronic Illness

Hey guys!

I’m so sorry you haven’t heard from me in over a month – BAD BLOGGER!!!  Before normal service resumes, I just wanted to quickly explain where I’ve been and why it’s been so quiet over here.

My Chronic Illnesses

If you’re a regular reader, you’ll know about my chronic illnesses.  I have ME and fibromyalgia, so am mostly bed or housebound a lot of the time.  I haven’t been able to go on holiday or travel abroad for over three years but recently I actually went away (it’s a miracle!)  

My husband had his 30th birthday last year, and I felt like I couldn’t help him celebrate in the way I’d have liked to as I was so unwell.  If I wasn’t ill, I’d have baked him a nice cake, spent time picking out nice presents and probably arranging some sort of fun surprise.  You only turn 30 once!  It had been on my mind that I wanted to try and spoil him a little more this year, so I starting planning pretty early.

Travelling with Chronic Illness Spoonie Travel Tips

My pilgrimage to my spiritual home – makeup mecca Sephora!

Travelling with Chronic Illness

My hubby has always wanted to go to Prague.  I’ve actually been, but around 10 years ago (I’m so old…!)  I knew it was something he’d love to do but I wasn’t sure how I’d manage it healthwise.  So I spent quite a bit of time planning – checking out accessibility and that sort of thing.  The flight was only 2 hours and was from our local airport, very nearby.  I was able to request airport assistance and be dropped off right in front of the airport terminal, which really helped.  

If I was healthy, I’d have probably booked 3 or 4 days there, but I knew that I wouldn’t be able to get out of bed every day.  So I booked a full week, thinking that even if I was stuck in bed for half of it, we’d still get a few days together to see the sights!  Of course my husband could still go exploring every day – I preferred for him to go out and have fun rather than be stuck in the apartment just because I was.  I made sure the apartment had satellite TV and a kitchenette so that if I was bed/housebound, I would have something to watch and would be able to access food and drinks.  

Travelling with Chronic Illness Spoonie Travel Tips

My favourite building in Prague, the beautiful Church of Our Lady of Tyn.

I won’t pretend the holiday was easy – flying, travelling and even going out for meals is REALLY DIFFICULT when you have chronic illness.  Particularly ME, which gets very cross when you try to leave bed and actually enjoy yourself!  It was hard, I paid for it during the trip and for several weeks afterwards.  But do you know what?  My husband and I haven’t had chance to make any new, exciting memories for years now.  Chronic illness has taken so much away from me – I’m not letting it take my memories and my relationship too!!  So although I doubt I’ll be travelling again any time soon, I don’t regret it.  Seeing my husband’s face light up, and seeing him enjoy his time absolutely made my year 🙂

Tips and Tricks?

I might write a post soon about travelling/holidaying with chronic illness.  Maybe some tips on making travelling easier and what to look for in a destination, accessibility wise.  Even what things I packed that really helped along the way!  Let me know if that’s something you’d be interested in, by leaving me a comment here or on social media.  You can also see a few snaps from my trip over on my Instagram!

Travelling with Chronic Illness Spoonie Travel Tips

The beautiful Church of Our Lady of Tyn in Prague, lit up at night!

So hopefully I’ll be back a little more regularly than I have been, and I can only apologise for being quiet for so long!  I know you guys understand.

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6 thoughts on “Where I’ve Been… // Chronic Illness

  1. Alexa Federico says:

    I’m so happy to hear you had a successful trip! I would love to go to Prague someday. I just went to Europe (Italy) a few weeks ago for the first time. I can’t wait to do more traveling!

  2. Ava Meena says:

    I love your attitude about traveling and how this trip was worth it for you despite how hard it was. I would love to hear any tips and tricks you have – I travel as often as my illnesses will allow and am always looking for ways to make it easier.

  3. Lee says:

    Wow! you are so lucky, My son went to Prague and raves about it. When I first saw your post with the beautiful Church I thought it was Disneyland! Memories are so important and also when I look back on my holidays I remeber the good times – not the pain and fatigue

    • Katie Cupcake - Life with ME says:

      I really am lucky! I’ve been once before, about ten years ago. It’s changed quite a lot, mostly for the better as in more restaurants and choice etc. It’s such a beautiful place. Yeah that church is like a gothic Disney castle isn’t it? Amazing! Thank you for reading! xx

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