ME/CFS: Rituximab Could Potentially Help Us Recover…

Hi guys!  I hope you’re as well as possible.  I was kindly sent a link to the following article about Rituximab by a colleague and found it really interesting.  I am currently on long-term sick leave from work, and as you probably know, I suffer from M.E (CFS) and fibromyalgia.  There is currently no known cure for either ME or fibromyalgia, and very little in the way of truly effective treatment.

Chronic Illness CFS ME Fibromyalgia Spoonie Blog Positive Thinking Rituximab

 

I am often sent articles to things that could potentially help me, which I really appreciate, but often they are things that won’t actually work (juicing etc!).  Reading this article though, it seems that there is finally some hope.  

Rituximab is an anti-cancer drug, which is currently being trialled to see if it relieves symptoms of ME.   Have a read here and let me know what you think.

I hope you find the article interesting.  Feel free to share it with anyone else who may find it useful.

Pain is real but so is hope spoonie chronic illness spoonie blog Rituximab


UPDATE:  I am pasting in here a comment I received with some updated information in July 2016, which I thought was really interesting!

Jo Best:  Hi Katie, just saw you repost this link on Twitter, so wondered if you knew that the charity Invest in ME (Research) is working towards a UK clinical trial of rituximab with the help of UK experts on B cell biology whose trials of rituximab in rheumatoid arthritis proved that to be an autoimmune disease.

As rituximab works by depleting B cells, their first step is to study B cells in ME patients, aiming to find out more about what’s going wrong and which patients are most likely to be helped by the drug. This is the news page on the site for the Invest in ME B cell / rituximab research – http://www.ukrituximabtrial.org/IIMEUKRT%20News.htm

It was also presented at the charity’s 11th international conference in June, so will be on the IIMEC11 DVD, which should be ready for distribution this week –http://investinme.eu/IIMEC11.shtml#dvd

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4 thoughts on “ME/CFS: Rituximab Could Potentially Help Us Recover…

  1. thoughtfulpigeon says:

    It’s an interesting article, might be something to see how it goes in the future. I’ve seen a few trials like this that end up sort of fizzling out though maybe they’re just still going on but not had a big breakthrough recently. I hope they manage to keep going with this or maybe develop something with less dramatic possible side effects, though they seem to come with everything these days. The ME specialist I saw said about some ME patients in America being treated with thyorixine, though I can’t find anything official online, so maybe they’ll find other drugs that actually help with ME that are originally designed for something else.

  2. Jo Best says:

    Hi Katie, just saw you repost this link on Twitter, so wondered if you knew that the charity Invest in ME (Research) is working towards a UK clinical trial of rituximab with the help of UK experts on B cell biology whose trials of rituximab in rheumatoid arthritis proved that to be an autoimmune disease. As rituximab works by depleting B cells, their first step is to study B cells in ME patients, aiming to find out more about what’s going wrong and which patients are most likely to be helped by the drug. This is the news page on the site for the Invest in ME B cell / rituximab research – http://www.ukrituximabtrial.org/IIMEUKRT%20News.htm
    It was also presented at the charity’s 11th international conference in June, so will be on the IIMEC11 DVD, which should be ready for distribution this week – http://investinme.eu/IIMEC11.shtml#dvd

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