Highs and Lows

Hi guys


Today has been like a little rollercoaster!  I felt as terrible as usual on waking up.  In case I haven’t mentioned it before, mornings are the worst time for my M.E and fibro.  I wake up feeling like I’ve been run over by a bus.  Which then realised it didn’t kill me off, so it reversed over me.  I generally wake up feeling extremely fatigued (from sleeping?!  Yeah, I don’t understand that either!) and very immobile.  It takes quite a while for my body to start working and moving around.  I also l have a lot of pain in the morning/daytime.  This tends to improve a little over the day, probably because I have several doses of medications and painkillers in my system come the afternoon.

I started to improve a little by late lunchtime, so I decided to slowly get up and dressed and try to go to work.  Now for those of you who don’t know, I haven’t been well enough to attend work for over a month (and rarely this year, unfortunately).  As I’m sure fellow spoonies will understand, the act of getting dressed and ready itself can sometimes be a killer!  But I managed, with several rest breaks.  I feel sorry for my colleagues though, as I didn’t have the spare energy for much makeup so they had to deal with my almost-bare face for the first time ever, haha!

I got a taxi to work (if you are also chronically ill and cannot walk far, you may qualify for the Access To Work Scheme – it is a lifesaver for me, as I was spending a fortune on taxis to and from work and this scheme contributes towards my costs – more info here: https://www.gov.uk/access-to-work/overview).

I only worked for 1.5 hours, but it felt like much longer – I think my body interpreted it as a full day!  I felt pretty rough after 30 minutes at my desk; a bit like I was going to pass out.  However with an emergency snack and lots of water, I made it through!  I was really proud and went home feeling like I had made some real progress….

Until!  My body decided I had aggravated it and it was going to reward me with a migraine.  Oh the joy!!  Luckily, I caught it quickly and took my migraine tablets.  After that and an hour in bed in a dark room, it cleared up.

I hope you enjoyed the thrilling tale of my day… sorry, I wish I could be more exciting for you!  Hope everyone is keeping well and looking forward to the weekend.

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