Five Things I Tell Myself That Are Not True as a Spoonie

5 Things I Tell Myself as a Spoonie…That Aren’t True! // Chronic Illness

Hey guys!  

I think most people have thoughts that repeat themselves over and over in their brains, but that they would never say out loud.  If they did, they would probably realise they’re not really true… 

We are all so critical of ourselves.  We would never dream of pointing out a friend’s ‘imperfections’ or telling them they weren’t good enough, but for some reason we see no problem in doing it to ourselves!  

That’s what prompted me to share with you… 5 things I tell myself as a spoonie – that aren’t true!

Five Things I Tell Myself That Are Not True as a Spoonie

I am lucky enough to have fairly good self-esteem (helped massively by being brought up by loving parents who always made me feel ‘good enough’), but I realised that when it comes to chronic illness, it’s different.  I’m much more critical of myself in relation to my health, and my perceived failures due to being unwell.  I worry about how it affects other people, I constantly have unrealistic expectations and then get disappointed when I can’t do what everyone else can. 

I decided to put these thoughts down in words – partly to convince myself they’re not true and I’m being too critical, and partly because I reckon lots of my fellow spoonies have the same thoughts all the time!  Let me know if I’m right 🙂

Five Things I Tell Myself as a Spoonie

1)  Everyone thinks I’m unreliable!  I say yes to invites and then have to cancel on the day of the event…sometimes even a few hours before, as I felt ok in the morning and then got worse later on. Eventually people will get fed up and stop inviting me places!

2)  Lots of people think I’m faking or exaggerating my illnesses.  They will see/hear about the once or twice a month I manage to get out somewhere and assume I’m “not that bad”. They’ll wonder why I can’t work if I’m well enough to go to a wedding (this has actually happened to me)!  They will think I pick and choose – if it sounds fun, I’m up to going – not so fun?  Nah, I’m too ill!

3)  My friends will find me boring!  They’ll get fed up of me having no interesting news for them, as I’ve done nothing but sleep, watch TV and go to the hospital.  They’ll find it dull that we no longer go for spontaneous after-work drinks, or nice meals out.  They’ll be bored to tears when they ask what’s new and I regale them with how my treatments are going or what new medication I’m trying.

4)   I am no longer the same person.  I’ve lost all my hobbies and pasttimes, spending all day watching TV and sleeping.  I can no longer pride myself on doing well at work, progressing in my career, meeting deadlines, getting good feedback in my reviews. I won’t get anywhere in life now and don’t know who I am anymore.  If I can’t DO things, who am I?!

5)  I’ll feel this ill forever.  I’ll never get back to work and then I’ll run out of money, lose my house, end up living back with parents, my husband will get fed up of me being a burden, and then, and then, and then… I’ll die alone and get eaten by my cat…!! STOP!!!

Five Things I Tell Myself That Are Not True as a Spoonie

It’s time to stop these negative, unproductive thoughts – they’re getting us nowhere!  We might be unfortunate enough to have one or two people in our lives that thinks we’re exaggerating or that finds us unreliable, but overall it’s in our heads!  

If I actually ask my friends and family, the truth is that they think I cope amazingly well and make the best of a bad situation.  People often say they’re impressed with how positive I stay, despite feeling so poorly.

The point is, more often than not, nobody is actually judging us!  We need to save our energy for the chronic illness battle, and not waste any on worries and negative thoughts that will get us nowhere.  I know that’s easier said than done sometimes, and we can’t always be positive.  

All spoonies have ‘f*ck it’ days where we don’t want to paste a smile on and pretend we’re ok, but repeating these thoughts over and over in our heads isn’t going to make things better.  It’ll bring us down, give us anxiety, wear away at us day by day.

So if you find yourself stuck in that cycle of negative thoughts, maybe write your thoughts down and then rip them up and throw them away!  Or leave them in the comments below and I’ll tell you they’re not true and that you’re a goddamn spoonie warrior!

Five Things I Tell Myself That Are Not True as a Spoonie


Let me know if you have the same sort of worries and thoughts, and how you deal with them!  Sending love and spoons your way guys 😊

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24 thoughts on “5 Things I Tell Myself as a Spoonie…That Aren’t True! // Chronic Illness

  1. illuminatingkate says:

    I needed this post. I’d actually written a blog post FILLED with negativity because I’m kind of stuck in this endless cycle of grief right now. I know that I’m allowed to feel those emotions, but I didn’t end up posting it because I don’t want to constantly be consumed by them. It’s nice to know I’m not the only one who feels this way. It’s just so nice to know I’m not alone. Thank you ❤ xxx

    • Katie Cupcake - Life with ME says:

      Aww I’m glad it came at a good time for you! Thank you for reading it. You’re definitely not alone! I had a huge grieving process, most of last year was the worst. It’s only natural, when we suffer so much loss and pain. I’m slowly becoming more and more positive, but it took a while! I really hope you start feeling happier soon hun xx

  2. lupietrish says:

    Yes. I feel like this constantly. I have no family besides my 2 kids & they live hours away. I started a blog a few days ago but have no clue what I’m doing. Lol yet another failure. Love your blog’s. Thanks for writing them.

    Lupietrish @wordpress.com

    • Katie Cupcake - Life with ME says:

      Aww I’m sorry you’re having the same issues. Chronic illness is tough! Nooo that’s not a failure AT ALL! It takes time to build up a new blog, and obviously upkeep can be hard when you’re ill. You’ll do a great job, don’t put too much pressure on yourself. Good luck! xx

      • lupietrish says:

        I’ll try. Never wrote anything & sure not used to talking about my life or anything. My therapist said I need to interact with people. I have AGORAPHOBIA. also new to Lupus. Thanks for the support.

  3. Tamara Epps says:

    The worst one for me is telling myself it’s my fault I’m ill, that I must be being punished for something, which is ridiculous. One of the ways I’ve found is changing it by instead of saying the Universe has prevented me from doing something terrible, it’s holding me back because the world can’t cope with the level of awesomeness I, and other spoonies, would bring to the world.

    With everything else I generally find writing it out in my journal helps. It doesn’t always stop the negativity but it gives me time to calm down from whatever emotion is fuelling it (anger, frustration, etc) so I at least have a clear head to approach the thought with.

  4. Ann says:

    I really needed to read this.
    I am a teacher worker towards my master’s degree, and I just found out my contract isn’t being renewed. Since I live in Kansas and it is an “at will” state, they do not have to give me a reason for non-renewal. However; as I have had health issues throughout the school year because of my condition, I’m fairly certain I know the reason.
    I’m a single mom, and I have to work.
    So… I am now on the great job hunt.
    On top of that I’m scared to date for fear a man will think I’m only looking for a “caretaker”. Fibro was a major stressor in my marriage, and in another long term relationship. I’ve had to learn to hard way to only count on me.
    I find comfort in knowing others have similar issues.
    Thank you for sharing, and remindin md that I AM a warrior goddess!

  5. Gillian Wright says:

    Thank you so much for sharing this. I’m feeling very sorry for myself this morning not helped by not being able to sleep a wink all night. I have M.E. and Fibro too and other stuff, it’s nice to find someone else who has both diagnoses.
    I’ve been ill for over ten years and am still grieving for the things I can’t do. I can go for periods of time where I can rise above the negative thoughtsbut I am having a hard time doing that today, so reading this was very timely.
    Hopefully I can climb out of this dip as quickly as Iwent into it.
    Thank you again.

  6. Katie Cupcake - Life with ME says:

    Hi Gillian, thanks for reading! What a coincidence, I’ve had no sleep either, just lay there in pain all night & couldn’t switch off. Sorry to hear you were the same!

    We can’t be positive all the time, sometimes life is just crap and we need a good film and some chocolate! But I hope it eases up soon and you feel a bit brighter. Get lots of rest. This quote is probably quite relevant today: https://www.instagram.com/p/BFeE5ekiU0j/

    xx

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